Martha is 13 and has a very rare chromosome microdeletion (16p13.11) affecting approx 50 people worldwide. Martha is globally developmentally delayed, has no speech, very limited gross and fine motor skills, severe learning difficulties, a mild hearing loss and wears glasses for bilateral astigmatism. Martha has no independent mobility so cannot roll, crawl, stand or walk. Martha also has developmental dysplasia of the hip and complex epilepsy and severe scoliosis.
Martha McCarthy
Sunday, 27 April 2014
Martha's First Independent Steps in her Walker Captured on Video
Martha has started using her walker (a Leckey Kidwalk 2) a lot at school. The more time she spends in the walker the stronger Martha gets and the more confident she becomes.
Martha's school captured a video clip of Martha using her walker in an exercise class and not only did Martha take a number of independent steps but also managed to kick a ball in the process.
The video is on YouTube https://www.youtube.com/watch?v=zJHk4ZKa2B8
Martha is continuing to make great progress with her walking and walks in her walker every day and is able to independently walk in it for quite long distances.
We are very grateful to the Children with Special Needs Foundation (http://www.childrenwithspecialneeds.co.uk) for funding this fantastic piece of equipment for Martha.
Friday, 31 January 2014
Martha Enjoys a Quince Players performance of Wind In the Willows
Martha attended a matinee performance of the Quince Players pantomime Wind in the Willows with a large group of her family to celebrate her 7th birthday.
The Quince Players Charity Gala Night supported Martha's Magic Steps and raised over eight hundred pounds which is a fantastic amount and will go towards continued therapy and specialist equipment to support Martha's development.
Many thanks to the Quince Players for their continued support of Martha and the whole family.
| Quince Players supporting Martha |
Many thanks to the Quince Players for their continued support of Martha and the whole family.
Martha Enjoys Disney on Ice @ O2
Wednesday, 20 November 2013
Quince Players Gala Night supporting Martha
The Quince Players have kindly donated a number of tickets to the opening night of The Wind in the Willows (this years pantomime) to Martha's Magic Steps to help raise money for Martha's on-going physiotherapy and equipment.
The Gala Night takes place on Thursday 16th January 2014 at 7:30pm at the Cordes Hall in Sunninghill. Tickets are just £10. Please contact Angela or Patrick to reserve tickets.
| Quince Players supporting Martha |
The Gala Night takes place on Thursday 16th January 2014 at 7:30pm at the Cordes Hall in Sunninghill. Tickets are just £10. Please contact Angela or Patrick to reserve tickets.
Monday, 18 November 2013
Martha Trials New Eye Gaze Computer
Martha has been trialling a new eye gaze computer at school that tracks her eye movements and can tell where on the screen she is looking. This allows Martha to operate the specialist computer software totally independently just with her eyes.
At the moment Martha is getting used to using the computer and can do things like make simple choices (e.g. which nursery rhyme she would like to hear), open doors to see what animal is behind them if she maintains her gaze on the door for three seconds and splats custard pies in peoples faces if she looks at them - one of Martha's favourites.
Martha will trial the eye gaze computer until the end of the month and we will then start discussing with the school if we can get one for Martha to use full time.
Watching Martha use the eye gaze computer is amazing and it should make a huge difference in the way Martha can communicate with the world around her.
| Martha painting a picture with the eye gaze computer |
Martha will trial the eye gaze computer until the end of the month and we will then start discussing with the school if we can get one for Martha to use full time.
Watching Martha use the eye gaze computer is amazing and it should make a huge difference in the way Martha can communicate with the world around her.
Sunday, 13 October 2013
Martha is Diagnosed with Epilepsy
Martha has this week been formally diagnosed with epilepsy. Martha has been having "petit-mal" type seizures for a few months and she was referred to a paediatrician at Frimley Park Hospital to investigate.
Martha attended St Peters hospital for an electroencephalograph (EEG). The preliminary results have shown that she has generalised seizures (meaning both sides of the brain are affected). Martha has now been referred to a specialist who will hopefully find the right treatment for Martha to minimise the impact of this going forwards.
| Martha having an EEG at St Peters |
Martha attended St Peters hospital for an electroencephalograph (EEG). The preliminary results have shown that she has generalised seizures (meaning both sides of the brain are affected). Martha has now been referred to a specialist who will hopefully find the right treatment for Martha to minimise the impact of this going forwards.
Martha Enjoys her Harvest Festival
Martha recently took part in her school Harvest Festival by helping sing "Dingle Dangle Scarecrow" dressed as a farmer.
As you can see from the picture and note that the school sent home, Martha did some excellent standing, something that she wouldn't have been able to do a few months ago. Martha is getting stronger and has recently shown (in her walker for support) that she wants to move around independently. Excellent progress Martha....well done...!!!
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| Martha at her school Harvest Festival |
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