Martha enjoying her birthday |
Martha's Blog
Martha is 13 and has a very rare chromosome microdeletion (16p13.11) affecting approx 50 people worldwide. Martha is globally developmentally delayed, has no speech, very limited gross and fine motor skills, severe learning difficulties, a mild hearing loss and wears glasses for bilateral astigmatism. Martha has no independent mobility so cannot roll, crawl, stand or walk. Martha also has developmental dysplasia of the hip and complex epilepsy and severe scoliosis.
Martha McCarthy
Saturday, 18 January 2020
Martha Enjoys her 13th Birthday
Martha enjoyed having a small family birthday party to celebrate turning thirteen years old. Martha enjoyed opening some presents before everyone sang Happy Birthday followed by eating some yummy birthday cake.
Martha then went to the matinee performance of the Quince Players pantomime Sleeping Beauty. Martha really enjoyed all the songs and dances. The Quince Players are continuing to very kindly supporting Martha's Magic Steps and we would like to thank them for everything they do for Martha and her family.
Sunday, 1 December 2019
Pete Completes the Spartan Trifecta for Martha
Our family friend, Pete, decided to take on the Spartan Trifecta to raise money towards an electric wheelchair for Martha. The Spartan Trifecta is a super tough and gruelling 44km (marathon) obstacle challenge spread over 2 days: The Spartan Beast 22km obstacle course on day one and the Spartan Super 16km and Spartan Super 6km on day two.
We are so grateful to Pete for taking on the challenge and raising over £3000 towards Martha's wheelchair. What a superstar!
Pete at the end of the Spartan Beast |
Martha Enjoys Meeting Santa at SAT Christmas Party
Martha and family had a great time at the Sebastian's Action Trust Christmas party. There were lots of fun things to do and lots of yummy food. Martha particularly enjoyed feeding the reindeer, playing with the snow in a wheelchair accessible Snow Globe, dancing at the disco and meeting Santa. We're very grateful to all the staff and volunteers at Sebastian's Action Trust for making us feel so welcome and looking after us all so well.
Martha meeting Santa |
Martha, Orla and Mummy enjoying the Snow Globe |
Tuesday, 21 August 2018
Martha’s EHCP Tribunal
Martha’s transition to the new EHCP hasn’t gone as well as
we’d hoped. As well as large gaps in the provision Martha needs (such as 1-2-1
support at all times) we were also concerned that the local authority school
could not meet Martha’s multiple and complex needs. Having tried to resolve
this for many months Martha’s case ended up going to a tribunal held at the
Royal Courts of Justice in London. The outcome of this was that while the EHCP
is now a lot more specific about what Martha needs in terms of input and
support requirements, the judge on the day felt that the local authority school
could meet Martha’s needs so has ruled that Martha should start at Manor Green
for her secondary education in September. While we still have significant
concerns about the schools ability to fully meet Martha’s needs we now have no
option but to see how things go. We will continue to monitor the progress of
the school to meet Martha’s needs and highlight any issues.
Martha has fun at Disneyland Paris on a Family Holiday
Martha enjoyed a few days away over the summer holidays with
her family at Disneyland in Paris. Travelling via the Eurotunnel in her
specially adapted wheelchair accessible vehicle (WAV) Martha and her family
drove to the Disneyland resort on the outskirts of Paris.
Safely Arrived at the Disneyland Parc in Paris |
Staying on resort made life much easier as we could walk from the accommodation to the attractions and Martha really enjoyed mealtimes trying all the different foods on offer.
Martha having Fun in the Sun |
Martha’s favourite ride while at the Disneyland Parc was “It’s a
Small World”. Martha loved this ride and the music. At home Martha has a doll that
plays the song and Martha was so excited to be in the park enjoying the ride.
Martha at It's a Small World ride |
Martha’s 11th Birthday Celebrations and Panto Visit
Martha turned eleven years old on 16th January
and we celebrated in the usual way with a family gathering before a trip to see
the Quince Players annual pantomime, this year Little Tommy Tucker.
Martha with her Birthday Cake |
Everyone
had a lovely time and as both Mummy, Daddy and sister Orla were all involved in
the production it really was a family affair.
Happy Christmas from Martha
Martha celebrated Christmas 2017 at home with her family and
her Grandad (Golf) and Nana came to visit.
Martha Wearing her Christmas Jumper |
Martha had a lovely time opening all her presents
and she particularly enjoyed tucking into her favourite food for Christmas
lunch.
Martha Opening some Presents |
Martha with Mummy, Orla, Nana and Grandad Golf. |
Merry Christmas from Martha to all of her family, friends and supporters.
Subscribe to:
Posts (Atom)